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8 Steps to Consider If You Are a Family Caregiver. Steps 6-8

Step 6. Define and set limits. Some of the behaviors of a person with dementia, such as wandering away from home, erratic sleep patterns, and violent or belligerent conduct, may compromise the health and safety of your loved one and/or others in the home. Write down and talk to others about what you perceive ahead of time to be the limits of your ability to be the primary caregiver, so when you reach them, there are tangible reminders and family support in knowing you are at your capacity and need to transition to another plan.

Step 7. Develop a long-term care plan. Most people with dementia may eventually need care greater than family caregivers can provide at home. Knowing this in advance can help you have strategies in place to take the next step, whether that is bringing in around-the-clock care or placing your loved one in a long-term care facility. It is strongly advisable to keep an updated list of a variety of options—long-term respite facilities, assisted living facilities, and nursing homes with dementia units—that are available in your area and to know their admittance criteria and costs.

Step 8. Take care of yourself. Caregiver stress and burnout are among the greatest challenges you face. Be proactive in caring for your own needs, and make yourself a priority. You deserve to be cared for and nurtured, and to have time and resources to occasionally indulge in those things that bring you pleasure and fulfillment, whether it’s a weekend to go see friends or a day in the park.

Jack Coito

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